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Really rare is what he said...

So, I've posted here before, but not for a while. I've had some rectal bleeding, some severe side pain, anemia, and some other unpleasant issues over the last 6 years. I've had numerous tests, including colonoscopies, endoscopies, barium x-rays, defocographies ...

On Sept 27 I had my 6th colonoscopy and 2nd endoscopy. Yesterday I went to the dr. to get the results. In the recovery room he told me that I would need to have surgery (I've had 2 previously for this issue). When I saw him yesterday he told me that I have hemorrhoids (again) and that in the over 10,000 patients that he's seen in his medical career, only 2 others have had all of these issues due only to hemorrhoids, but that is what is wrong with me. They can't find any triggers for them (and they've looked and tested for all normal and abnormal triggers), and all normal treatment (and abnormal treatments) have not worked, either. The severe bleeding, the anemia, the everything that I've had, is due to the hemorrhoids. This, as he stated, is highly rare and unusual, but that's what is happening. I have to have another small bowel barium xray coming up and he wants to do a capsule endoscopy so that he can test the small intestines just to make sure that there isn't anything in those that he's missing, but he doesn't think that they will find anything. After those tests are over, I'll go back and see him Nov 24th to get those results, and then we can schedule time with the surgeon to have them removed. He said that because of the severity of them, and the way they present themselves and that they do not respond to treatment, that I will continue to need surgery throughout my life, and if pattern holds, that I will need one surgery every 2-3 years. I'm on a no sugar, low carb diet because he said that the make up of those foods react badly to the bacteria in my intestines, making the hemorrhoids angrier (like they could get any angrier)...

I'm going to call the surgeon (I know who I'm using already .. the same one that did the other two) because I have a wedding in February (me ... I'm getting married) and I want this done and over with before Feb. 19th. And I don't know if thats possible with the way that the dates of being able to see everyone has been laid out. I don't know if it's possible, but it's worth a shot if nothing else. I don't want to start my marriage off with needing surgery.

Comments

( 3 comments — Leave a comment )
ftemery
Oct. 15th, 2010 03:27 pm (UTC)
Just sending hugs and (unfortunately for me) some understanding! Congratulations on your upcoming wedding. One reason I don't worry about styles anymore is because of my hemorrhoids. It's dark denim shorts for me. Just in case.
celestialnyte
Oct. 15th, 2010 03:32 pm (UTC)
Thank you! Hugs are appreciated. I'm still kind of in a fog about it ... not the part about the upcoming surgery. I knew that was going to have to happen.

Just that I'll continue to need surgery .. forever. That sounds so .. unbelievable.
ftemery
Oct. 15th, 2010 03:44 pm (UTC)
Yeah and I don't believe it. It's possible I suppose, but not absolute. I had an ongoing gut problem that won't recur now after surgery last March. Of course nobody else ever figured it out before but this time I had the right doctor at the right time. I had a 'floating colon' that would twist at times and then go back where it should be. could have killed me and nobody else ever figured it out. Too bad it didn't fix the other issues, but the hemorrhoids - gah, I hate the name even.
( 3 comments — Leave a comment )

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